Walking in their shoes: Fundraiser for rare disease reaches Perth

Michael Malak’s first walk for Save Our Sons Duchenne Foundation stretched in cold, wet weather from Sydney to Canberra.

But this year, it was a completely different challenge.

“It was our hottest walk yet,” Michael said.

He and 17 other walkers took the fundraiser across the country for the first time to Perth, tackling 100km over four scorching days.

Temperatures hit 39°C, with heat bouncing off the pavement and walkers dousing themselves in water to stay cool.

“The support of the people around you keeps you going,” Michael said. “No one wanted to stop.”

The annual walk raises awareness and vital funds for Duchenne Muscular Dystrophy (DMD), a progressive genetic disorder that affects one in every 5,000 newborn boys, causing severe disability and reducing life expectancy. Symptoms typically appear between the ages of two and five, with about a third of cases arising without family history.

“The idea is you feel the pain that these boys are constantly in, day in and day out,” Michael said.

The team of walkers also stopped at two schools attended by boys diagnosed with DMD, sharing the message of inclusiveness and belonging.

Michael said the walk allows participants to experience a fraction of the daily pain endured by those living with DMD.

“It’s only a few hours for us. The idea is to walk in their shoes.”

The PAYCE Foundation has long-supported Michael in his fundraising efforts, donating $10,000 annually. This year, Michael said he’s closing in on a $20,000 fundraising target.

“I am thankful for the years of support,” he said.